In Living Chiari…

September is Chiari Awareness Month…yesterday…I asked my friend to remind me to write about it today…he didn’t…it did…by waking me up with…a headache…

Two-and-a-half years after surgery…I am doing remarkably well…I am able to work every day…exercise…and…live what I consider to be a normal life…my MRIs are good…my neurosurgeon says I’m doing great…

Does this mean I’m symptom free…

No…

And…I never will be…that’s just the way it is…funny thing is…sometimes…I can’t tell what is…Chiari…and…what is just…life

Take this headache for example…most people with Chiari have headaches…that was probably my major symptom…along with numbness…but…a lot of other people have headaches…that do not have Chiari…so…how do I know…

Bertha…says…I don’t…I can’t…because…I can never be a person…who doesn’t have…Chiari…it’s as simple as that…

She says…it’s the perpetual…chicken or the egg question…the one that never gets answered…

And…she says…it really doesn’t matter…at this point…if my headache is Chiari related or not…it’s just a headache…and…the only question is…what do I do about it

Of course…she goes on…to relate that to my life in general…reminding me…it doesn’t matter how things got to be…the way they are…in any situation…the only question is…what do I do about it

Hmmm…

Jane

PS…please take the time to click on the Chiari link…for more information regarding this underdiagnosed condition…

I Can See Foggy Now…The Clear is Gone…

I’m really not sure what to write about today…or if I even want to write…I woke up with a headache…which always slows things down…puts things in a different perspective…not necessarily a bad one…not grumpy…just…less clear…so…thoughts and lessons…get jumbled in my mind…as they tumble…like stones in one of those polisher things…

And…Bertha…says…it’s not a bad thing…really…that my thoughts need buffing every once in a while…so that I can see things with fresh eyes…from a different perspective…

I suppose she’s right…and…it would do no good to try to argue with her…not today…when my clarity has slipped by the wayside…and my sharp edge is tumbling and smoothing…

I do know…the headache will pass…the jumbled thoughts will reassemble…life will go on…

Jane